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Posterior Cortical Atrophy Annual Seminar
28/04/2023 @ 10:30 am - 5:30 pm
This is the first PCA Annual Seminar bringing together people living with PCA, clinicians and researchers. Sessions will feature presenters from international centres of excellence including UCL Queen Square Institute of Neurology, the UK MRC Cognition and Brain Sciences Unit and the Mayo Clinic, USA.
Please sign up as a member of RDS so we can share information about future events and resources with you. RDS is a free service funded by The National Brain Appeal (TNBA).
This is an in-person event only. There will not be a stream or zoom link available. Attendance is free but donations to The National Brain Appeal (TNBA) are welcomed. Lunch will be provided thanks to the kind support of TNBA. As such please let us know if you need to cancel your ticket so we can offer the ticket to another RDS member.
Agenda
10:30 – 11:30 – Arrivals and Refreshments
11:00 – 11:10 – Welcome and announcements – Prof Sebastian Crutch, Dementia Research Centre UCL
11:10 – 11:25 – What is PCA? – Prof Sebastian Crutch, Dementia Research Centre UCL
11:25 – 11:40 – Living with PCA: reflections on the journey to diagnosis
11:40 – 12:00 – What causes PCA? – Dr Jonathan Graff-Radford, Mayo Clinic
12:00 – 12:25 – Panel discussion
12:25 – 12:30 – Introducing Research Opportunities for GNMLD – Emilie Brotherhood, Dementia Research Centre UCL
12:30 – 13:30 – Lunch
13:30 – 13:50 – Visual assessment in PCA – College of Optometrists
13:50 – 14:05 – Neuropsychological assessment in PCA – Dr Samrah Ahmed, University of Reading
14:05 – 14:20 – Strategies, empowerment and PCA peer support groups – RDS Direct support team
14:20 – 14:35 – Living with PCA: adapting following diagnosis
14:35 – 14:50 – Tailoring counselling and support to suit people with PCA – Dr Emma Harding, Dementia Research Centre UCL
14:50 – 15:20 – Break (and optional departure)
15:20 – 15:35 – PCA research update – Dr Keir Yong, Dementia Research Centre, UCL
15:35 – 16:00 – Current and future research directions – Dr Jonathan Graff-Radford, Mayo Clinic
16:00 – 16:10 – Reaching and coordination – Dr Matthew Bancroft, DCMN UCL
16:10 – 16:20 – Spatial orientation and balance – Dr Dilek Ocal, Dementia Research Centre, UCL
16:20 – 16:30 – Neuropathology of PCA – Dr Zeinab Abdi, Queen Square Brain Bank, UCL
16:30 – 17:00 – Considering heterogeneity beyond PCA- transdiagnostic perspectives – Prof Matthew Lambon-Ralph, Cambridge
17:00 – 17:30 – Panel discussion
17:30 – Close
