Celebrating the IDEAL Programme

In this recording Fiona Carragher, Director of Research and Influencing for Alzheimer's Society discusses why the IDEAL Programme is important, how the Alzheimer's Society has been involved and how they have put the Programmes findings to use to support people living with dementia and carers.

This talk was recording at the IDEAL Programme Celebration event, held at the National Council for Voluntary Organisations on 30th November 2023.

The event brought together researchers, participants and supporters to celebrate conclusion of the IDEAL Programme.

IDEAL is the largest study of living with dementia in Great Britain. The evidence created from the Project between 2014 and 2023 has enabled, and continues to enable, the development of new policy, interventions, and initiatives to transform the lives of people with dementia and their carers.

For more information visit:
http://idealproject.org.uk

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00:00 Introductions
00:52 Alzheimer's Society role
01:23 Understanding what helps people living with dementia
01:50 How the IDEAL Programme has helped
03:45 Collaboration
05:17 The future

#IdealProgramme #dementiacare @alzheimerssociety @idealprogramme1252 @universityofexeter @theesrc

Speaker:

Fiona joined Alzheimer’s Society in January 2019. She plays a pivotal role in the Society’s vision to create a world without dementia: leading our world-class research programme and striving to strengthen our position as the national charity leader on dementia health and social care policy.

A Consultant Clinical Biochemist by background, Fiona has worked in multi-professional teams for two decades at a range of large hospitals, including the Royal Hospital for Sick Children (Edinburgh) and Kings College Hospital (London) – with a focus on providing high quality, innovative services.

Prior to joining the Society, Fiona was the Deputy Chief Scientific Officer for NHS England. Here, she provided leadership for 50,000 healthcare science professionals, and expert advice to the health system on science, innovation, and diagnostics – most notably in establishing the UK Antimicrobial Resistance Diagnostics programme and the system wide Action Plan on Hearing Loss.

Fiona is a passionate advocate for women in health and led the establishment of the first Women in Science and Engineering fellowship programme in the NHS.

She has also joined the board of Kent and Medway Health and Social Care Partnership NHS Trust as a Non-Executive Director.
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In this recording we hear from Professor Linda Clare and senior leaders from the IDEAL Programme - Professor Martin Knapp, Professor Fiona Matthews, Dr Catherine Quinn and Professor Christina Victor. They discuss the IDEAL Programme and the implications of its findings on Dementia Policy and Dementia Care.

This talk was recording at the IDEAL Programme Celebration event, held at the National Council for Voluntary Organisations on 30th November 2023.

The event brought together researchers, participants and supporters to celebrate conclusion of the IDEAL Programme.

IDEAL is the largest study of living with dementia in Great Britain. The evidence created from the Project between 2014 and 2023 has enabled, and continues to enable, the development of new policy, interventions, and initiatives to transform the lives of people with dementia and their carers.

For more information visit:
http://idealproject.org.uk

00:00 Leaders contributions to the IDEAL Programme
04:20 IDEAL learning applied to policy and practice
10:10 How has IDEAL influenced research and the future
17:18 What did you enjoy about the Programme?

#IdealProgramme #dementiacare @idealprogramme1252 @alzheimerssociety @universityofexeter @theesrc

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Dementia Researcher works alongside events organisers to share their work. If you're organising a dementia research event and would like us to record or share your talks, to get them open access and to reach a wider audience, get in touch:

https://www.dementiaresearcher.nihr.ac.uk
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Follow us on Social Media:
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In this recording Linda Clare, Professor of Clinical Psychology of Ageing and Dementia from University of Exeter presents an overview of the IDEAL Programme, from its original vision to its enduring legacy. Sharing key findings that have and continue to transform dementia care.

This talk was recording at the IDEAL Programme Celebration event, held at the National Council for Voluntary Organisations on 30th November 2023.

The event brought together researchers, participants and supporters to celebrate conclusion of the IDEAL Programme.

IDEAL is the largest study of living with dementia in Great Britain. The evidence created from the Project between 2014 and 2023 has enabled, and continues to enable, the development of new policy, interventions, and initiatives to transform the lives of people with dementia and their carers.

For more information visit:
http://idealproject.org.uk

00:00 Introductions
01:48 IDEAL Programme Overview
08:42 Arts based approaches
09:16 Programme Structure
10:29 The IDEAL cohort
12:04 What was known at the start
13:03 Developing a framework
14:37 Living well
23:30 The Bridge, a dementia opera
24:26 Thinking about carers
27:46 Developing the living well map
34:37 Tools and resources
40:26 Final thoughts and thanks

#IdealProgramme #dementiacare @idealprogramme1252 @alzheimerssociety @universityofexeter @theesrc

Speaker:

Linda Clare directs the Centre for Research in Ageing and Cognitive Health (REACH), Linda’s research aims to improve the lives of older people and people who are living with dementia or other age-related neurodegenerative conditions by promoting well-being, preventing or reducing age-related disability, and improving rehabilitation and care. She leads both large observational studies and intervention trials, and is particularly known for pioneering the application of cognitive rehabilitation approaches for people with early-stage Alzheimer’s disease. She is chief investigator for the IDEAL cohort study of people with dementia and carers, and leads the Alzheimer’s Society Centre of Excellence related to this programme. She is dementia theme lead for NIHR Applied Research Collaboration South-West Peninsula (PenARC).

Linda completed her undergraduate studies at the University of Cambridge, trained as a clinical psychologist at University College London, and undertook further training in clinical neuropsychology. She gained her PhD while working at the MRC Cognition and Brain Sciences Unit in Cambridge. In 2004 she received the May Davidson award from the British Psychological Society for her contribution to the development of clinical psychology in the UK. Her ScD was awarded by the University of Cambridge in 2015 in recognition of her work on awareness in people with dementia. She is a Chartered Psychologist registered as a practitioner with the Health and Care Professions Council.

Linda was a lecturer on the clinical psychology doctoral programme at University College London from 1999 to 2003. In 2004 she moved to Bangor University where she was awarded a personal chair in 2008. She joined the University of Exeter in 2015.

Linda has published over 300 peer-reviewed journal articles and book chapters. She is a past Editor for the for the journal Neuropsychological Rehabilitation and the Cochrane Collaboration’s dementia and cognitive improvement group. She is a Fellow of the British Psychological Society and former chair of the British Psychological Society Advisory Group on Dementia. She is a Fellow of the Academy of Social Sciences and the Gerontological Society of America, serves on the Leadership Committee of the International Research Network on Dementia Prevention and on the Alzheimer's Disease International Medical and Scientific Advisory Panel, and is an emeritus member of the Global Council on Brain Health.
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Dementia Researcher works alongside events organisers to share their work. If you're organising a dementia research event and would like us to record or share your talks, to get them open access and to reach a wider audience, get in touch:

https://www.dementiaresearcher.nihr.ac.uk
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Follow us on Social Media:
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In this recording we hear from Chris, Jacqui, Jane, Julia, Monica and Keith who are members of the IDEAL Programme ALWAYs Group. They reflect on their involvement with the Programme, and discuss the work and how they contributed.

The ALWAYS network (Action on Living Well: Asking You) are people with dementia and carers of people with dementia who advise on different aspects of the project based on their personal experience, skills and expertise. The network, recruited through their links with Innovations in Dementia and Alzheimer’s Society.

This talk was recording at the IDEAL Programme Celebration event, held at the National Council for Voluntary Organisations on 30th November 2023.

The event brought together researchers, participants and supporters to celebrate conclusion of the IDEAL Programme.

IDEAL is the largest study of living with dementia in Great Britain. The evidence created from the Project between 2014 and 2023 has enabled, and continues to enable, the development of new policy, interventions, and initiatives to transform the lives of people with dementia and their carers.

For more information visit:
http://idealproject.org.uk

00:00 Introductions
00:10 Chris talk
03:06 Jacqui talk
05:52 Jane talk
08:27 Julia talk
13:18 Monica talk
16:14 Keith talk

#IdealProgramme #dementiacare @idealprogramme1252 @alzheimerssociety @universityofexeter @theesrc

More from the ALWAYs Group

https://youtu.be/OD2Qtv8sXEs?si=GuMbmlXXe851Xgsf

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Dementia Researcher works alongside events organisers to share their work. If you're organising a dementia research event and would like us to record or share your talks, to get them open access and to reach a wider audience, get in touch:

https://www.dementiaresearcher.nihr.ac.uk
--

Follow us on Social Media:
https://www.instagram.com/dementia_researcher/
https://www.facebook.com/Dementia.Researcher/

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