Inspiring stories

Caring for someone with MND – Martyn’s experiences

MND Matters Podcast

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Sometimes emotional, sometimes humorous, always honest – MND Matters gives people affected by MND the chance to share their stories.

The podcast, brought to you by the MND Association, tackles a host of subjects with the aim of sharing experiences, offering informal advice and support, and raising awareness.

“One of the things we’ve said is – as long as we laugh more times than we cry, we’re winning.”

Carers of people with motor neurone disease (MND) often face significant emotional and financial challenges. In this episode, released during Carers Week 2024, Martyn shares his personal experience as an unpaid carer for his wife Anna, who was diagnosed with MND in May 2023. 

As part of our MND Guarantee campaign, we are calling on the next government to do a full review of the support currently available to unpaid carers. Unpaid carers are the backbone of support for people with MND, and the financial support they receive does not reflect the contribution they make. We want this to change. 

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